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> some forms have life expectancy of 35 without medications

This. You don't have a lot of time to experiment.

My guess is it's best to listen to your doctor and get on statins immediately. Then alter your diet and activity level, and after that try cranking back the statin to see if the lifestyle changes took.



Lifestyle or dietary changes don't work if he has familial hypercholesterolemia. You're not supposed to ever adjust your medication without consulting your MD. It's a good general rule that - when broken - can have fatal consequences in serious diseases such as this.


I agree with you - we're just getting our signals crossed.

My unspoken advice was, "under doctor supervision," which I assume everyone understands (I know, a lot people don't.)

You can get a genetic test for FH, but afaik they're rarely performed, although maybe the OP needs one to convince them they really have the condition.

What I suggested was to follow the doctor's advice and, later, under their supervision, adjust statin dosage after lifestyle changes to see if the condition is still present. I'm not a doctor, but I know that my friend's doctor did exactly this - not as a way to convince them they had FH (they were already convinced), but to see if they needed that high of a statin dosage (they did.) That may be what the OP needs to be convinced, while also staying safe.

We both agree that the OP needs to be convinced that they have FH as soon as possible, and should do nothing regarding their treatment without a doctor's approval.




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